Category: The Beloved Who Suffers Well

The Fruit of Myasthenia Gravis is Priceless!

On By IreneIn Affirmation, Celebration, Coaching, Courage, Faith, Grace, Healing, Hope, Journey, Kingdom Lifestyle, Mental Fitness, Myasthenia Gravis Healing Journey, Season of Life, Suffering, The Beloved Who Suffers WellLeave a comment

Growing up things has not been that hard for me. I also have the tendency to take the easy way out. Seemingly blessed with good brain, being born in relatively stable home and having the privilege of being native of the land has also given me easier opportunities. I get into uni with my native quota and upon graduation it was relatively easy to get a job. Then changing job gave me a huge leap in my paycheck. Being a driven person, hitting target was my aim because earning a bigger paycheck was of utmost importance. It was not too hard but it was not too easy either. Being raised by my strict father, it was in my system to make things work for me. Even when I cried over my decision, I have to try to make things work and not giving up too easily. Those foundation has given me a good starting point.

Despite all the worldly successes that I experienced in the past, my heart was never satisfied. I was yearning for something more and that yearning eventually led me to quit my job and be in mission fully covered by God. Boy the lesson was tough. I grumble often and still did not learn my lesson of trust until Myasthenia Gravis (MG) made an entrance to my life. In the first few years of living with MG, I still did not grasp the real value of patience. Only after the crisis in 2023 did I finally grasp the meaning of patient suffering.

My desire for complete healing, I mean complete healing was and still is strong. I am only settling for the best and so I set myself to a heck of a journey. I know for a fact that allopathic medicine can only bring me to the point of monthly maintenance subscription. The management protocols are not designed for healing, only for control. But control is necessary to buy me time and give me clarity on what needs to be done.

In my quest of reversing MG, I learnt patience. At first rather reluctantly but eventually I understood the value of my suffering. God the Father invited me to live a life as the beloved who suffers well. I said yes though I did not know what does that entail. I was still restless and eager in an impatient (or lack of trust) way to get rid of the modern medication I was on. When I woke up in the ICU room realising that the cup of suffering was not to pass me, that was my moment of victorious surrender. I began learning patience as I was well aware I needed time to heal. I needed to be patient with myself and trust the process. I made a remarkable recovery journey. Got us a new off roader to serve us for our land that I signed the S&P of a week prior to ICU admission; travelled to the neigbouring country for a friend’s wedding – all within 6 months post ICU.

However, I was still a slow learner of patience even through the physical need to suffer. My life was still chaotic and God came to bring order to the chaos. I restarted scripture reading discipline which I thought was too hard after having my child. It was not the easiest restart as my nervous system was still on a high alert. I literally fought with my four year old back then to secure my sacred hour in the morning. Even though I knew I needed to be patient, my disposition was still an impatient one – deep in I did not give myself the space to really be. I still did not know how to properly allow myself to feel, I was swinging the pendulum between hope and despair. But I also noticed the time of recovery becomes faster and faster.

Then came the minor flare end of 2024, it was not too bad, even turned out to be a blessing in disguise. I know now that all my physical actions worked to heal my thymus and shrink the thymoma. That flare became the turning point of helping me to realize I have allowed stress to consume my being. Stress that resulted in a flare. It took me quite a long time to stabilize again. Through that I learnt the value of patient bearing of suffering. I also learnt that I had heaps of unprocessed and hidden fear. Those fear were false evidence appearing real. When I decided to face them, they came out bigger and scarier! Faith and techniques I learnt through the years was my remedy of these fears. My faith was put to test and I was willing to walk the rugged terrain of suffering to get to the side of victory. This victory was also fueled by our dire financial situation which I will share adventure of it in my next post.

Months after months of practicing simple breathing exercise has helped me to calm down relatively faster. I first learnt of pursed lips breathing after my ICU stay. It was a necessary part of my lungs healing. Till today I am still struggling with phlegm built up two years post extubation. I came to realize that I am only affected at a certain time of the day, most likely coinciding with the trauma of the time of reintubation. That helped me to learn about the power of mind body connection in healing. I started making it a point to build a stronger mindset that serves me using all sort of hacks from dopamine hacks to positive self talk to applying scriptures in my specific situation. The stronger mindset resulted in me being able to handle difficult things much better. For example, I used to think that exercise was too hard for me. What actually happened was the underlying fear of triggering MG with exercise. But I had a lung condition that took too long to heal, so I started walking on the treadmill for cardio exercise. It was initially hard but as I kept telling myself I was doing hard work, my brain kept rewarding me with quality dopamine. It gets easier and I even expanded to the bicycle as well as weight exercises.

As I keep expanding my mindset to one that is ordered towards the Word of God using physical and tangible techniques, I found myself more and more able to handle stress and challenges. I just show up in life together with MG. Knowing my limit and keep expanding it as well. My nervous system has become more regulated and calmed down. This greatly helped with healing. Not only that, the pages of the scripture jumps out in real life for me. “I can do all things through Christ who strengthens me” – Philippians 4: 13; became my theme of this season. Truly I can only do all things because of the strength I received from Christ. His strength helped me to patiently bear my suffering, learnt from it, grew in endurance and that endurance produces hope that does not disappoint.

Dear friends, what sufferings are you carrying? How would you like to grow in the virtue of patience and perseverance? What are your hope for the suffering you are carrying? Let’s connect to share more about this.

With lots of love,
Irene

mindset matters thymoma healing myasthenia gravis

Mindset Matters In Healing Journey

On By IreneIn Faith, Grace, Healing, Mental Fitness, Myasthenia Gravis Healing Journey, Season of Life, Suffering, The Beloved Who Suffers Well, WorthLeave a comment

The difference between a strong mindset day and a weak day can be felt in my body. On days I feel strong and possible, it normally go that way – strong and possible, symptoms at bay. When my mind are being cluttered with objections to what’s possible, my body gets the bashing – symptoms flare. After years of living with Myasthenia Gravis (MG), my observation is that it is way better to have a strong mindset. It takes time to build up those mental muscles and the good news is that our brain is pretty dynamic to serve us better.

Mindset in the context of healing basically covers how strong or how deep is our belief that our body has the capacity to heal. Do we believe that healing is possible? Knowing the answer to this will help us to see how far we will go. If our belief in healing is not that deep, we can change that because again our brain is dynamic and those mental muscles can be retrain towards serving us better. The next question to ponder is; are we willing to do what it takes to get to our desired bodily healing?

I sure am willing but I was also painfully aware of my own limiting beliefs. It was like a tug of war in my head; I really desire and believe that healing is possible for me and at the same time there’s an opposing voice throwing doubts. My prayer at times like that mimics the father from Mark 9: 24 – Lord, I do believe, help my unbelief. His grace indeed does not disappoint as He continued to help me to strengthen my belief.

During the early days of diagnosis, things can be overwhelming and I was not spared of that. I remember hearing so many noises and I did not know which one to believe. All I knew at that time was that the journey of healing is going to be grace-filled for me. I started learning about more about MG just to gain better understanding on what’s going on with me. The things I learnt did not always sit well with me; in fact some of the information or medical labels was personally quite discouraging. One example is the definition of autoimmunity. It is commonly expressed as your body fighting against you. That did not sit well with me because I believe in a God who made all things well and that includes my body. Our body is made to fight for us, not against us. It is made to protect us but why autoimmune happened then?. That question led me to dig deeper into the health rabbit hole that I got into and I found a definition that resonates better with me. 

What causes disease is first of all a weak body as a result of toxin accumulation. The accumulated poison in our body can then confused our immune system. Therefore my body needed of help and time to detoxify, and then heal itself. With a picture like this, I felt at peace with my body. Knowing full well that my body is not at war gave me confidence and even built up my endurance in the healing journey. Just the change of view or label if you’d like that; change my whole perspective which in turn change my belief system to a more life giving one.

The opposite of life giving is life taking and what often caused that is FEAR. Fear is an integral part of life, necessary for survival but there is also fear created by our hypervigilant mind. These fears are often a result of a traumatic experience. For those of us who live with a chronic condition, it is a traumatic experience to be diagnosed with something that change our lives forever. For me I can no longer be that energizer bunny I used to be; my level of efficiency dropped and it takes me way longer to complete a task that used to be easy for me; at the peak of the symptoms I cannot even tie my own hair. There was a period of time when driving was so hard that I gave up for safety reason. It was hard and it can be scary. So I recognized how my hypervigilant mind would “warn” me about dangers that were often irrational. If not properly addressed, these fears can cripple us to the point of not living well.

Just a few weeks ago, I went for a walk on a lonely road surrounded by beautiful forest accompanied by the sound of the river. On the side of the road were lands owned by independent farmers, so on one of side of the road, I spotted a few empty chemical barrels. Immediately fear kicked in; my heart rate went up and I started to feel symptoms rising. In Apr 2023, I had a myasthenic crisis requiring ventilation that was caused by chemical induced pneumonia. Long story short, I was exposed to pesticides while walking at a park. The memory of the ICU stay came rushing in and it was not pleasant. My survival mind said: I do not want that again. Thanks be to God I became aware of what’s going on in my mind, it was my hypervigilant mind going on high alert and it was irrational. I started doing pursed lips breathing to calm myself. As I calmed down, I started thinking more clearly: I was in a way better state than I was in 2023. I’ve done a lot of work on my body, so my body has way better ability to detox, plus the thymoma shrunk by 50% and scripture said that no poison shall prevail against me (Mark 16: 18)!. I said a prayer and told myself that it is safe, that I am strong enough for this and that if any chemical has been sprayed, it would have been some time ago as evidenced by the appearance of the grass.

Regulating back to safety reinforces in my mind that the irrational fear can be overcome. I finished that walk feeling stronger, climbed about 800m of distance in a 200m ascend without the need of mestinon (the anticholinerase drug I used to help manage symptoms). 

Stronger mindset is a life time of work. As we build our mental muscles, we will also grow more resilient and will be able to do things that was seemingly impossible when we were not living with chronic illness.  Do you find this helpful in your journey? Let me know in the comment what helps you to build a stronger mindset. Let’s connect to support each other in our journey of building stronger mental muscles.

Our being is body, mind and soul. To achieve bodily healing, actions need to be taken to give our body the best chance. I will share more in depth in my next post.

With lots of love,
Irene

Healing is Possible – Thymoma 50% Shrunk!

On By IreneIn Healing, Myasthenia Gravis Healing Journey, Suffering, The Beloved Who Suffers WellLeave a comment

So I had a flare early Dec 2024 which took a worse turn after 2 sleepless nights. With the symptoms of Myasthenia Gravis (MG) not stabilizing well enough by my routine appointment in early Jan, I caved in to 2 doses IV immunoglobulin which required hospitalization. Since I was warded, my neurologist asked if I’d like a chest CT scan done. It has been almost 2 years since my last scan, so I thought why not (even though it was not exactly pleasant). And that turned out to be such a blessing because the scan showed a 50% reduction in size of the thymoma! What a great sign and sight of healing!

What my neurologist said when he showed me the scan report was even more remarkable. He said: “Irene, your prayer works!”. I was so in awe of the scan report that it took me a bit of time to take in what he said. That was a testament of my faith and this faith comes with work (James 2: 17). When I was diagnosed with Myasthenia Gravis (thymoma present), we were getting ready for me to have the thymectomy surgery done once I was stable enough. However, God has a different plan.

As I was preparing myself mentally for the open chest surgery, I told everyone in my family that was the plan. My mother was devastated considering the nature of the surgery which was pretty major. She asked me to reconsider and look for alternative. But at that time, there was no alternative presented to us. MG was really new to us and it doesn’t help that it is also a rare condition with a vast variability. Looking back I understand now that we were responding to a crisis situation that was pretty traumatic. Our lives changed overnight and we were faced with the unknown. In that situation, we just jumped in to whatever that was available.

As I stabilized, the Cardiothoracic (CT) surgeon was not available. That was on top of the lockdown chaos where everything was in disarray. A year later, I started wondering if God was inviting us to see another way. So I prayed for clarity. The blessing that came out of being sick with MG was my openness to learning (and unlearning). I ended up in the rabbit hole of health and discovered so many things that was shocking to me. Shocking because I have been accustomed to a certain way of living, a certain way of “intelligence” and a certain way of processing information. In the midst of the rabbit hole adventure, I discovered that the thymus still has important functions and roles for our immune system. What a shocking discovery! I was told the thymus is basically useless in adulthood but that is far from truth. So I started to lean on the direction of foregoing the surgery.

Part of the learning process also brought me to the knowledge that Traditional Chinese Medicine (TCM) modality of acupuncture is helpful for MG. So there I was, praying for a good one and God did not disappoint. I met my TCM Physician who has a Masters in autoimmunity, not only that, he also has someone dear to him that is in remission of MG. What a blessing! Through them, I discovered that it is possible to shrink the thymoma naturally with herbs. So that sealed our decision to go the natural way.

The thymoma diagnosis also made it possible for me to do this. It is well encapsulated and not pressing on any of my organs, so it’s actually pretty stable. With almost zero information (or evidence) on natural shrinking of thymoma, we entered our journey with faith (2 Corinthians 5: 7). At that time, we did not know if anything was going to work. The encouragement I got from people were generally to do the surgery while I still can. And after the MG crisis in 2023, I even told my husband if nothing change in my thymus, perhaps it’s time to reconsider the surgery. Right actions after that led me to feeling better and I sort of forgot about surgery. In the midst of that, we discovered ONE documented case of thymoma shrinking. That was giving me hope. And that hope and faith was rewarded with sight on Jan 2025.

I was overcome by joy and was really in awe of my Good God who sees, known and loved me. Filled with hope, I’d like to share this hope with you. In my subsequent posts, I will be sharing more of what I’ve done and changes that has contributed to the physical healing of my thymus. Do share with me your thoughts on this miracle I am experiencing and if you are in similar situation, do connect with me and let’s help each other in our journey of healing.

With lots of love,
Irene

The Beloved Who Suffers Well – Part 2

On By IreneIn Coaching, Courage, Faith, Grace, Healing, Hope, Journey, Kingdom Lifestyle, Myasthenia Gravis Healing Journey, Providence, Suffering, The Beloved Who Suffers WellLeave a comment

My dear sister Bea who was instrumental in bringing me to a space of living out my desire to be known has been supporting me to do something about it. That’s what got me into sharing my reflection weekly during a very trying time healthwise. God is so good in providing friends who supported me through it.

The second reflection is one that prompted me to step out in faith. One of my biggest struggle is faith in providence, it was difficult during my years as a full time lay missionary, it was still very challenging afterwards. With the lion within me awakened, I know what is required of me is just to step out in faith: I do what I know what to do (the natural), and then trust God fully that He will do the supernatural. Here’s the reflection written and shared on 18 December 2022, may you be blessed.

When desperate, call on St. Jude! That was exactly what I did on 9 Dec, asking many companions to pray together with me. St. Jude activated saints around me that loved me into the deep which eventually led me to stillness that brought about breakthrough.

Examining my desire to be healed led me to realise how much I did I not prioritise my body due to limited funds. I wanted to check the state of my body and take the right action, I did not. I wanted to do a proper body detox and cleanse, I did not. I wanted to eat more organic, that happened limitedly. Realising my own sin against my body; I apologized and reconciled with my body.

My body start opening up to respond positively to treatment. I started gaining more sleep with nightly deliverance prayer from anxiety. Then I started embodying a decisive identity of “I am important”. Being decisive to make me a priority led me to my current holistic doctor. With renewed hope, I’ve started a nutritional supportive regime and so far my body is responding well.

Praising God for His favour and thanking you for your continous prayer. As I dare to hope and trust in the Lord, I am also sharing my appeal with you. Please pray about this and I truly appreciate any form of support.

Love and blessings,
Irene

#thebelovedwhosufferswell


With this reflection, I attached my appeal and my work in mental fitness promotional poster. For the purpose of sharing it here, I have removed edited out some information due to sensitivity and ethical practice.

The responses I garnered were mixed; some are very encouraging, some even took action to bless me financially, some immediately helped me to promote my work and some went totally silent. The silent part can be deafening and I took it with grace, believing that they are praying for me. This stepping out in faith exercise brought me to realization that I finally get it: I get the lesson that God is teaching me since the beginning of my YES to Him. The idol of my false sense of self sufficiency was well and truly shattered this time. I realized all these while, what I thought was lack of trust was rooted in me trying to control all the outcomes of my life including my attempts to control God. Now I understand the sense of lack of freedom whenever I am invited to trust God in financial providence. With all sincerity, I tried my best to trust and allow God to work but there’s more anxiety than freedom. This amazing breakthrough that came with the awakened lion within is grace from God. I am also seeing this partially as the fruit of my own daily practice of mental fitness. All these has been prepared before hand for me to come to a moment of grace where I dare to step out and I also dare to trust and allow God to provide as He pleases.

So here I am stepping out in faith to invite you to consider my work in mental fitness training. If you are curious about this, connect with me. If someone you know may benefit from this program, send them to me. I pray that you are blessed by my reflection and that you are encouraged to find victory in your challenges and sufferings. May you find the courage to step out in faith!

With lots of love,
Irene