I recently learnt that healing is circular instead of linear; that was quite astounding for me. There’s great encouragement and wisdom in that school of thought. I found myself experiencing setbacks in the midst of progress periodically. Those moments can be discouraging but when seen through the lens of a circular healing journey, it’s quiet empowering. Setbacks just meant it’s time to take a pit stop and evaluate. It becomes a circle of learning more of myself and the condition. With every circle of learning, I also come to appreciate myself and the whole journey more deeply.
In an older post, I elaborated the importance of celebration. Living celebration through my healing journey from Myasthenia Gravis (MG) has been a great experience of affirmation. We started celebrating from the moment we’ve got a confirmed diagnosis as we finally knew what we are up against. When I was discharged, we celebrated with a good meal. I remember vividly how nervous was I when I finally started driving again. Thanks to the lockdown, the option at that time was me driving out to collect donations of expressed breast milk (EBM) for my child. We were blessed to have generous donors who helped us through those early months of fully breastfeeding our child. I knew my limit very well at that time, so there were great planning involved – with full gears of sunglasses and hat plus praying really hard for an overcast morning. I came back within an hour with new supply for the baby and feeling victorious. We celebrated that big time as it was real progress and such a great milestone.
Then came the time when I started on the steroid dose reduction, it was a happy day and great celebration. After a few months and was almost off steroid, I started having regression. It was quite discouraging but I did not allow that to stop me. Pushing through with a good mindset and a strong network. I was still experiencing a fair bit of symptoms back in Dec 2020 but we decided that my birthday is a good day to celebrate. Every initial disappointment after the doctor’s visit was being treated as an opportunity to find a better remedy for me.
Having friends that introduced various natural remedies to me is a true blessing. I am glad people are open and they know me well enough to be confident that I take responsibility for my decision whether to try the remedies they introduced or not. The values that I believe in and live by has also been a navigating post for me. I cannot imagine missing out on good remedies just because of being a scary blamer that absolutely nobody dare to recommend anything. Being daring to try stuffs (some of which did not work) is certainly something worth celebrating.
Celebrating progress keeps us going and it makes the journey pleasant. Dear friends, I encourage you to be creative in your celebration keeping in mind that this is not just a reward system. Celebrating yourself is directly celebrating the One who made you. Think about it, who gave you the grace to see goodness in the midst of darkness? Who enable you to work through your issues? Who is the happiest when you are happy? My answer to those questions: none other than God. I wish you a great time honoring your Creator by celebrating you.
A very important but seldom talked about element when it comes to bodily healing is mental health. We are a whole being, therefore mental health is vital for any healing journey. It was clear to me one of the biggest aggravator of Myasthenia Gravis (MG) in me was chronic unmanaged stress. Hence managing stress and regulating my emotions became a primary goal. I learnt to let go of a lot of unnecessary worries, grudges and heaps of things not in my control. I began to set better priorities and strengthen my boundaries all the while learning to live with MG as well as learning to mother.
What helped me to stay on the course was an overall healthy mindset. I am determined to beat MG and thrive in my life. I know well the reality may be difficult at times, not denying it in a bit. It was tempting to get into a pity party when symptoms hit hard. In all honesty, symptoms are discouraging and hard to live with. I felt like I want to get over and done with it fast whenever it hit me. However, there’s a hard reality that my body needed the time and conducive environment to heal. So, bouncing between “yes, I got this” to “I just want to give up” were common occurance especially in the beginning. I am so blessed to be surrounded by people who support me in this journey, constantly reminding me who I truly am.
Those reminders were fuel for me. Every time I felt beaten, I face the giant instead of running away from it. I allow myself to acknowledge how I felt and also decide not to stay in that low state for too long. How do I rise above the feeling of defeat? – that has been a question I asked myself over and over again. Friends, this is where it is so important to have someone (or a few people) you trust that you can share your life with. I have a few people that I share deeply with; just being able to talk to someone who love you for who you are, is healing. It would be extra awesome if the one you share with is able to just listen and ask you meaningful question. Effective questioning practiced by coaches has power to unlock certain perspectives that would otherwise be blind to us.
In our fast paced world, so many of us lack the time to even be present to ourselves. Some of us due to childhood trauma may not even know how to regulate our emotions. When I was on the peak of taking steroid as a means of MG disease control, my emotions were so messed up. I cried for small matters and it was hard to even regulate my emotions properly. Thank God my husband was really understanding and supported me through those tough times. This is where having some tools in hand would be helpful. When we feel a certain uneasy emotion, it is important to take a pause. A simple way that I practice is to first name the emotion, then ask Jesus how would I like Him to minister to me at that moment?. These kind of pauses helped me to calm down. With a calm mind, then I can tackle the source of those uneasy emotions. From then praise will rise. In the same way, I think it is also good to take a pause when good emotion arises – just taking time to thank God for the blessings and share that moment with Him. I am pretty sure God loves celebrating with us.
Whatever journey we are on, the path would sometimes be smooth and sometimes there are potholes on the road. Whether it be a nicely paved road or some bits where we are met with holes, always remember to look up – I bet the view is beautiful. Dear friends, I wish you a great adventure in your journey. If you find it particularly hard at this moment of your journey, reach out to someone – a family member, a true friend, a coach or a counsellor. Please share your life in all sincerity because it is normal to want to be known by someone. Indeed it is very good for our mental and overall health if we are able to allow ourselves to be truly seen and heard. I leave you with this quote and pray that you are blessed in your journey.
One common outcome I observed from coaching is the client’s shift from chaos to ownership of their actions. This eventually lead to a happier life as they embody a lifestyle that empowers them to self responsibility. They no longer see the surroundings as disadvantaging them, rather they are empowered to take the responsibility for the actions towards their wellbeing. In other word, self ownership is a major step towards meaning in life. When it comes to my healing journey, self ownership plays an important role for me – it shifts my perspective and energy towards the important and necessary. When I first got the diagnosis of Myasthenia Gravis (MG), the question I asked myself was: “what needs to happen to give me the best chance to beat this?”.
That question was the beginning of a creative journey of exploring my options. I left the hospital with prescription medicines, some advice on managing the symptoms with the prescriptions and nothing else. Lifestyle change, diet and management of stress was never mentioned. Thank God I have people who were experienced in managing other autoimmune with diet who immediately suggested that I research on the right diet. From our observation, autoimmune seems to be triggered by chronic stress, environmental change and sudden diet change. So, that became the first point of research.
There were so many articles and so little information about healing MG naturally. So a lot of decision were made based on the little knowledge we can garner. The first step was making a change in diet. My best decision was to cut down on sugar and carb. About 9 months afterwards I was so grateful I made that change. Turned out one of the side of effect of steroid is insulin insensitivity. My blood sugar was on a rising trend though still within limit. When we saw the trend, my doctor then asked me to cut down on sugar and carb. Imagine if I did not make that move earlier on! It also help as sugar worsen the symptoms for me, so it’s easier to say no.
Apart from diet I also explore the option of natural remedies that would support the healing process. MG is so rare that I never hear testimonies of any products that helped. I came across products that helped other autoimmune diseases and was very keen to try. Everybody asked me to consult my neurologist before trying anything out which is a safe move and I thank God my doctor is a very open minded and respectful person. When I brought the idea of trying the herbs out, his response was so encouraging. He told me he has no experience and the only way to find out is to try it out. If it doesn’t work, just stop it. I shared this experience with a friend of mine who is healing from another autoimmune disorder, his response was: “good on you, your doctor is very open minded and supportive”.
That is the right patient and doctor relationship. I recently came across so many instances where the opposite was true. It is utterly unacceptable that some doctors telling the patient to either listen to him/her or go home and die when the patient raised some concern. This is where we need to draw the line as patients. Something important to bear in mind is that your physician is responsible to help you co-manage your disease and you are responsible for your own well being and health. Get this, your attending physician is your hired hand, they work for you not the other way round. They are hired to provide professional opinions but it is still up to you to accept it or not. That’s why when things doesn’t feel intuitively right, it’s wise to seek second opinion. After all, informed consent of procedures and prescription drugs is the right of every patient.
Hence it is very important to NOT place your doctor as your ultimate health authority. They are also human and they like us can also make mistakes. Remember that God is your highest authority, with that set right you’ll discover great freedom in within you to listen to your body and you’ll also find creative ways to honor your God given body that has an amazing ability to heal with the right condition.
Some of us may have heard stories of people given the diagnosis of cancer and was given a “death sentence” by their physician who say that they only have a short period to live and the person really die at the predicted date. We know that death and life are in the power of the tongue (Proverbs 18: 21), hence that makes it even more important to know God is your authority. I was told I have a malfunctioned immune system at the beginning of the diagnosis but my immediate reaction was: “No, that’s not the truth and I refuse to believe that”. I said a prayer breaking those words and bless my body instead. I proclaimed to me that my immune system needed time to heal. This gave me great inner strength especially on difficult days that I could not even hold my eyes open for 10 seconds. Through the difficulties I still believe my body is amazing and has powerful ability to heal itself.
Another important responsibility of a person on the healing journey is to ALWAYS do your research and keep learning about the condition. Absolutely no one on this earth knows everything, even so called experts do not know it all. You are supposed to be the one who knows your body best. Unfortunately for some of us (myself included), we can be quite disconnected. When our body show us a symptom, our modern attitude would likely look for ways to suppress the symptoms like popping paracetamol whenever there’s a headache without even stopping to think if our body is trying to tell us something. Taking the symptoms seriously can help us to navigate our healing journey. Whenever the symptoms improved or worsen, I asked the question: what has been done differently? I go into all investigative mode just to make things a little fun for myself. That would give me a good way forward on what to continue or what to avoid.
Continuous education and openness to try different things has led me to a season of great progress in healing. I learnt to be patient with myself as most natural healing remedies take time and there bound to be some progress and some regress. That has been my experience with Terahertz treated water. I was initially drawn due to a lecture that pointed out our healthy cells vibrational resonance that is similar to the treated water, hence that would slowly promote healing with effective hydration. I tried it because it made sense to me and I took full responsibility in doing so and praise be to God I’ve been responding well to most of the remedies I tried.
It is really empowering to be more in tune with my own body especially when I can tell what works and what don’t. I did not choose to be sick but I chose to get the most out of my season of healing and celebrating every step of the way. Every medication weaned off is a great cause to celebrate. Every improvement on my eyelids strength when I drive is a great occasion to offer highest praise to God. I refuse to own the disease but I am owning every bit of my healing journey.
Dearest friends, have you stopped to think how in tune are you with your body? Do you agree that bodily health gives us the freedom to live out our calling more fully? Be encouraged therefore to take ownership of what you do with your body. Take time to read labels of food ingredients and discern well what you allow into your body, medication included. I pray for a great healing journey as well as a blessed journey of self discovery. Most importantly trust your God given body because your Creator designs well. May you be blessed.
June is the month dedicated to the awareness of Myasthenia Gravis (MG) and it has become really close to my heart being on my journey of healing from Myasthenia Gravis. Yes I know the general consensus said that the condition has no cure but I choose to trust in my body’s ability to heal. MG thrivers are sometimes called snowflake warriors for the fact that every case is unique. That pose a challenge of its own as there is no certainty or a good pattern as reference. I have taken the path of looking at my unique condition as an opportunity to experience fullness of life in ways I would not have explored otherwise.
When I was given the diagnosis in Feb 2020, my world was an utter chaos. There were so many things that I needed to consider and to take care of, all at the same time giving myself the best chance to beat this. Not only my world was chaotic, the world around me turned into a real chaos with the lockdown and restrictions started to affect our lives shortly after I was discharged from the hospital. The looming fear at that point of time was intense and I can feel it in the atmosphere. If anything you need to know about autoimmunity, extreme stress is very bad for any autoimmune condition. Mine was triggered by a prolonged period of unmanaged stress plus sudden change of environment. It is also known that people who are immunosuppressed like myself are categorized as being high risk of viral infection. So it was natural of me of being fearful.
I was just beginning to navigate life with a chronic condition and then this virus chaos came about. Fear was all over the place and I was not spared from it. Fear causes stress that worsen my condition and it’s very easy to see how bad it affect me. So I made a conscious decision since being out of the hospital to manage my stress well. This fear business took a toll on me as almost everyone around me were fear filled about the virus. I reached the tipping point real quickly and decided that fear is no way of living. It was sucking life out of me and I did not like it. In my desperation for life literally, I called upon the name of Jesus and asked Him; what should I do? How do I live?
“Let your faith be bigger than your fear!”
That was all I heard and that was enough to propel me forward. The first strategy of winning a battle is to know the enemy and that’s where I started – naming my fear. It was not hard to name them as the first and biggest one that came out was the fear of death. I feared death after escaping death not too long ago. I feared that an infection may kill me because at that point of time I was swallowing 20 tablets daily; a majority of which were immunosuppressive drugs. That would made me really vulnerable. Nailing this fear to the cross and charging forward in life with faith was my experience of saving grace. I have confidence and courage that I will live and thrive. Proper precaution taken, the rest is trust and choosing to live in joy. After all, my health is my responsibility, I personally think it is unfair to put my health risk as a burden for the rest of the society. Praise be to God for His protection; all through this year of healing I have regained strength and is rarely sick.
Putting fear in perspective is an important element in moving forward. The way to do that is to seek the truth about the specific situation. We know that the truth will set us free although it is likely to be uncomfortable. Let’s look at some comparison: if you catch a cold, you know that the chance of you recovering and healing is more than 99%. With that knowledge, fear is by logic small in comparison. The inconvenience of being unable to function optimally for a few days that may bother you more than the fear of death. In my situation with MG, nothing was certain. When I was administered with the rescue medication, there was no guarantee that it will work on me, we hope I respond which I did (with no side effects). Same with the maintenance medication, we can only hope I respond, which I also did until we adjusted the dose. When I asked if a remission is possible, the answer I got was “I can’t tell you for sure because MG is so variable. Some patients get into remission and it came back again, some get into permanent remission and some never get into remission”.
With such variability and uncertainty, it was very easy to despair and let fear grip over my life. But I knew this very clearly, fear perpetuate stress and stress worsen the symptoms. Given the situation, although saddened, I made the choice to live in hope. If some people get into a permanent remission, I shall be one of them. The choice I made to live in the fullness of hope and life carved my way forward. I took actions that would give me the best chance to get to the remission. A massive change in lifestyle was required – diet, habits, routine etc. It was a sharp learning curve to be in tuned with my body again. I realized how brainwashed I was! And that was uncomfortable! One great thing coming out of this healing journey is the deepening of my empathy towards myself as well as to others especially those who could not see a way forward in a fear saturated world.
Being able to face my fears with the truth and knowledge in hand and then move forward in faith has been a great blessing. I live in freedom precisely because I never allow the disease to define who I am. I admit it is not the easiest of journey and fear does creep in from time to time. I allow my self to process the fear and then to formulate the way forward with my Saviour. All this is possible thanks to my years as a coach and also those years in ministering to people as well as support from my inner circle.
Fear is a constant companion whether we like it or not. Some are necessary like in the case of meeting a tiger, you better let your fear propel you run for your life. I would say most fear we face today are opportunities if we allow them to. Dear friends, if you are having difficulty in navigating fear and are feeling stuck, do feel free to reach out to me. I run my own coaching practice and I can also recommend other coaches or counsellors to you. Know that it is my prayer for you to be well. Fear does not have the final say and it is possible to live victoriously. May you be blessed!