Tag: Healing

The Fruit of Myasthenia Gravis is Priceless!

On By IreneIn Affirmation, Celebration, Coaching, Courage, Faith, Grace, Healing, Hope, Journey, Kingdom Lifestyle, Mental Fitness, Myasthenia Gravis Healing Journey, Season of Life, Suffering, The Beloved Who Suffers WellLeave a comment

Growing up things has not been that hard for me. I also have the tendency to take the easy way out. Seemingly blessed with good brain, being born in relatively stable home and having the privilege of being native of the land has also given me easier opportunities. I get into uni with my native quota and upon graduation it was relatively easy to get a job. Then changing job gave me a huge leap in my paycheck. Being a driven person, hitting target was my aim because earning a bigger paycheck was of utmost importance. It was not too hard but it was not too easy either. Being raised by my strict father, it was in my system to make things work for me. Even when I cried over my decision, I have to try to make things work and not giving up too easily. Those foundation has given me a good starting point.

Despite all the worldly successes that I experienced in the past, my heart was never satisfied. I was yearning for something more and that yearning eventually led me to quit my job and be in mission fully covered by God. Boy the lesson was tough. I grumble often and still did not learn my lesson of trust until Myasthenia Gravis (MG) made an entrance to my life. In the first few years of living with MG, I still did not grasp the real value of patience. Only after the crisis in 2023 did I finally grasp the meaning of patient suffering.

My desire for complete healing, I mean complete healing was and still is strong. I am only settling for the best and so I set myself to a heck of a journey. I know for a fact that allopathic medicine can only bring me to the point of monthly maintenance subscription. The management protocols are not designed for healing, only for control. But control is necessary to buy me time and give me clarity on what needs to be done.

In my quest of reversing MG, I learnt patience. At first rather reluctantly but eventually I understood the value of my suffering. God the Father invited me to live a life as the beloved who suffers well. I said yes though I did not know what does that entail. I was still restless and eager in an impatient (or lack of trust) way to get rid of the modern medication I was on. When I woke up in the ICU room realising that the cup of suffering was not to pass me, that was my moment of victorious surrender. I began learning patience as I was well aware I needed time to heal. I needed to be patient with myself and trust the process. I made a remarkable recovery journey. Got us a new off roader to serve us for our land that I signed the S&P of a week prior to ICU admission; travelled to the neigbouring country for a friend’s wedding – all within 6 months post ICU.

However, I was still a slow learner of patience even through the physical need to suffer. My life was still chaotic and God came to bring order to the chaos. I restarted scripture reading discipline which I thought was too hard after having my child. It was not the easiest restart as my nervous system was still on a high alert. I literally fought with my four year old back then to secure my sacred hour in the morning. Even though I knew I needed to be patient, my disposition was still an impatient one – deep in I did not give myself the space to really be. I still did not know how to properly allow myself to feel, I was swinging the pendulum between hope and despair. But I also noticed the time of recovery becomes faster and faster.

Then came the minor flare end of 2024, it was not too bad, even turned out to be a blessing in disguise. I know now that all my physical actions worked to heal my thymus and shrink the thymoma. That flare became the turning point of helping me to realize I have allowed stress to consume my being. Stress that resulted in a flare. It took me quite a long time to stabilize again. Through that I learnt the value of patient bearing of suffering. I also learnt that I had heaps of unprocessed and hidden fear. Those fear were false evidence appearing real. When I decided to face them, they came out bigger and scarier! Faith and techniques I learnt through the years was my remedy of these fears. My faith was put to test and I was willing to walk the rugged terrain of suffering to get to the side of victory. This victory was also fueled by our dire financial situation which I will share adventure of it in my next post.

Months after months of practicing simple breathing exercise has helped me to calm down relatively faster. I first learnt of pursed lips breathing after my ICU stay. It was a necessary part of my lungs healing. Till today I am still struggling with phlegm built up two years post extubation. I came to realize that I am only affected at a certain time of the day, most likely coinciding with the trauma of the time of reintubation. That helped me to learn about the power of mind body connection in healing. I started making it a point to build a stronger mindset that serves me using all sort of hacks from dopamine hacks to positive self talk to applying scriptures in my specific situation. The stronger mindset resulted in me being able to handle difficult things much better. For example, I used to think that exercise was too hard for me. What actually happened was the underlying fear of triggering MG with exercise. But I had a lung condition that took too long to heal, so I started walking on the treadmill for cardio exercise. It was initially hard but as I kept telling myself I was doing hard work, my brain kept rewarding me with quality dopamine. It gets easier and I even expanded to the bicycle as well as weight exercises.

As I keep expanding my mindset to one that is ordered towards the Word of God using physical and tangible techniques, I found myself more and more able to handle stress and challenges. I just show up in life together with MG. Knowing my limit and keep expanding it as well. My nervous system has become more regulated and calmed down. This greatly helped with healing. Not only that, the pages of the scripture jumps out in real life for me. “I can do all things through Christ who strengthens me” – Philippians 4: 13; became my theme of this season. Truly I can only do all things because of the strength I received from Christ. His strength helped me to patiently bear my suffering, learnt from it, grew in endurance and that endurance produces hope that does not disappoint.

Dear friends, what sufferings are you carrying? How would you like to grow in the virtue of patience and perseverance? What are your hope for the suffering you are carrying? Let’s connect to share more about this.

With lots of love,
Irene

Lifestyle Modification for Healing

On By IreneIn Commitment, Faith, Grace, Healing, Hope, Journey, Myasthenia Gravis Healing JourneyLeave a comment

I was at my routine acupuncture appointment when another patient asked me to help with translation. At the end of it, I was amazed that she refused acupuncture when that treatment was likely to help her heal the pain she was experiencing way more effectively. When I talked about it with my TCM physician, he made a comment that the pain was not enough for her to take up the treatment. It made me realized my motivation to change my lifestyle was mainly driven by pain of Myasthenia Gravis (MG). I don’t actually live with physical pain but MG gave me different kind of pain. I used to be active, fun, talkative (still is although limited) and adventurous. With MG, I learnt (or rather I have to) to ration my energy usage as my muscles gets tired easily. So I cannot be as active and as I used to be. I love going on hikes and quite an outdoor person; with MG even that has to be rationed. I’ve always imagined myself being a fun mom, one who would bring her children out often and play with them; with MG I have to ration that (and it breaks my heart).

Talking about children, we’ve always wanted a bigger family; with MG or rather with the immunosuppressant I am on, we are forced to avoid pregnancy. That really breaks my heart (and my husband’s too). I am a person who enjoys my independence, hence the pain of not being able to drive confidently due to double vision was such a great motivation to change and find my remedy. Pain is indeed a great motivator but we need to take action in order to move away from the pain towards our goal of healing. I am grateful that I had some training on what to do when faced with sickness. When I married my husband I took over the role of nourishing him with food that heals. He lives with ulcerative colitis and I learnt first hand how lifestyle modification has helped him to be in remission. So the first thing I did was to look into my diet.

Diet Adjustment
It takes some trial and error to find what’s most suitable. I started with cutting off gluten, progressed to cutting off carbs and after being in the ICU, I cut off store bought broccoli and severely cut down my plants intake. That’s when things started looking much better. When I ran a research on diet for MG, there were several testimonies that said plant based diet worked for them. So I gave it a try and it did not go well with me. The vegetarian diet is not suitable for me. Switching to meat based ketogenic diet has helped me. I still have my herbs and spices because I love the flavor in my food. My diet still consist of some carbs and I also find that I can handle “these”troublesome” food much better now than when I was sicker.

We have an amazing eating out culture here and I enjoy our local food a lot. So when my husband’s income shrunk, the first thing we do to cut down our expenses was to not eat out. Just three months after that, I started driving confidently. It was so amazing that now I would think a few times before deciding to eat out. The problem with eating out lies not just in the carbs, I suspect carbs is the least of the problem. My biggest issue may be the additives in food which are mostly chemical. Well, I am grateful that the fruit of our financial crisis is improved body health.

Reducing Toxic Load
The second action I took in my effort to heal was to reduce my toxic load. I changed all my cleaning agents to natural based agents. Chemical absorbs through the skin and inhalation, so my thought is that reducing the toxic load at home would be helpful. I’ve also been replacing my plasticware to glass or stainless steel. This is to reduce the potential of hormone disruption from plastic. Glass or stainless steel ware are also easier to clean. I am aware that it is challenging to completely get rid of the use of plastic at home, so minimizing my exposure is the best that I can do.

Managing EMF Exposure
We discovered the detrimental effect of EMF exposure by accident. My husband has been on the sensitive side with food due to ulcerative colitis, so his list of avoidance was pretty long to begin with. When we first got married, the avoidance list was not good but also not too bad. He could handle tomatoes better back then but after a few years of moving to my homeland, he started getting more autoimmune reaction with the sensitive ingredients like tomatoes. It got so bad that I completely cut off tomatoes. It was frustrating because tomatoes makes food delicious. On the other hand, the restrictions made me creative with the way I cook. I make sweet and sour dishes without tomatoes or pineapple and it’s still delicious. The frustration however, got us to start looking back at what changed. We discovered that 5G was rolled out in 2021, it was not long after that my husband started getting more and more reaction. That realization led us to action. We know that EMF does not cause disease but it certainly hinders our body’s ability to heal.

We quickly got a new grounding mat as the old one does not work that well anymore. The EMF guarding is especially crucial for sleep, because that’s the time our body recover and heal. Sleeping with grounding mat has helped my husband in reducing the pain that resulted from autoimmune reaction. I still remember when I was in a serious MG flare back in Dec 2022, grounding helped me to manage the symptoms. I could sleep better and the attacks were not as bad. This is because grounding help our bodies to discharge to the earth. With the free radicals discharged from our bodies, inflammation is reduced. The other thing was sewing EMF blocker sheet on our curtain. It is very effective to block out EMF wave coming from 5G towers. There are so many of them in the cities. Ugly but serving an important function. Who doesn’t like good cellphone reception? I certainly appreciate that. So the best we can do is to manage our exposure.

As we’ve discovered, we cannot completely get rid of unhealthy food, plastic and EMF exposure, so periodically we do need to detoxify. In my next post, I am going to share my detoxification protocol over the years. Hope you are blessed and encouraged by what I’ve shared. Do share it with someone who may benefit from this.

With lots of love,
Irene

mindset matters thymoma healing myasthenia gravis

Mindset Matters In Healing Journey

On By IreneIn Faith, Grace, Healing, Mental Fitness, Myasthenia Gravis Healing Journey, Season of Life, Suffering, The Beloved Who Suffers Well, WorthLeave a comment

The difference between a strong mindset day and a weak day can be felt in my body. On days I feel strong and possible, it normally go that way – strong and possible, symptoms at bay. When my mind are being cluttered with objections to what’s possible, my body gets the bashing – symptoms flare. After years of living with Myasthenia Gravis (MG), my observation is that it is way better to have a strong mindset. It takes time to build up those mental muscles and the good news is that our brain is pretty dynamic to serve us better.

Mindset in the context of healing basically covers how strong or how deep is our belief that our body has the capacity to heal. Do we believe that healing is possible? Knowing the answer to this will help us to see how far we will go. If our belief in healing is not that deep, we can change that because again our brain is dynamic and those mental muscles can be retrain towards serving us better. The next question to ponder is; are we willing to do what it takes to get to our desired bodily healing?

I sure am willing but I was also painfully aware of my own limiting beliefs. It was like a tug of war in my head; I really desire and believe that healing is possible for me and at the same time there’s an opposing voice throwing doubts. My prayer at times like that mimics the father from Mark 9: 24 – Lord, I do believe, help my unbelief. His grace indeed does not disappoint as He continued to help me to strengthen my belief.

During the early days of diagnosis, things can be overwhelming and I was not spared of that. I remember hearing so many noises and I did not know which one to believe. All I knew at that time was that the journey of healing is going to be grace-filled for me. I started learning about more about MG just to gain better understanding on what’s going on with me. The things I learnt did not always sit well with me; in fact some of the information or medical labels was personally quite discouraging. One example is the definition of autoimmunity. It is commonly expressed as your body fighting against you. That did not sit well with me because I believe in a God who made all things well and that includes my body. Our body is made to fight for us, not against us. It is made to protect us but why autoimmune happened then?. That question led me to dig deeper into the health rabbit hole that I got into and I found a definition that resonates better with me. 

What causes disease is first of all a weak body as a result of toxin accumulation. The accumulated poison in our body can then confused our immune system. Therefore my body needed of help and time to detoxify, and then heal itself. With a picture like this, I felt at peace with my body. Knowing full well that my body is not at war gave me confidence and even built up my endurance in the healing journey. Just the change of view or label if you’d like that; change my whole perspective which in turn change my belief system to a more life giving one.

The opposite of life giving is life taking and what often caused that is FEAR. Fear is an integral part of life, necessary for survival but there is also fear created by our hypervigilant mind. These fears are often a result of a traumatic experience. For those of us who live with a chronic condition, it is a traumatic experience to be diagnosed with something that change our lives forever. For me I can no longer be that energizer bunny I used to be; my level of efficiency dropped and it takes me way longer to complete a task that used to be easy for me; at the peak of the symptoms I cannot even tie my own hair. There was a period of time when driving was so hard that I gave up for safety reason. It was hard and it can be scary. So I recognized how my hypervigilant mind would “warn” me about dangers that were often irrational. If not properly addressed, these fears can cripple us to the point of not living well.

Just a few weeks ago, I went for a walk on a lonely road surrounded by beautiful forest accompanied by the sound of the river. On the side of the road were lands owned by independent farmers, so on one of side of the road, I spotted a few empty chemical barrels. Immediately fear kicked in; my heart rate went up and I started to feel symptoms rising. In Apr 2023, I had a myasthenic crisis requiring ventilation that was caused by chemical induced pneumonia. Long story short, I was exposed to pesticides while walking at a park. The memory of the ICU stay came rushing in and it was not pleasant. My survival mind said: I do not want that again. Thanks be to God I became aware of what’s going on in my mind, it was my hypervigilant mind going on high alert and it was irrational. I started doing pursed lips breathing to calm myself. As I calmed down, I started thinking more clearly: I was in a way better state than I was in 2023. I’ve done a lot of work on my body, so my body has way better ability to detox, plus the thymoma shrunk by 50% and scripture said that no poison shall prevail against me (Mark 16: 18)!. I said a prayer and told myself that it is safe, that I am strong enough for this and that if any chemical has been sprayed, it would have been some time ago as evidenced by the appearance of the grass.

Regulating back to safety reinforces in my mind that the irrational fear can be overcome. I finished that walk feeling stronger, climbed about 800m of distance in a 200m ascend without the need of mestinon (the anticholinerase drug I used to help manage symptoms). 

Stronger mindset is a life time of work. As we build our mental muscles, we will also grow more resilient and will be able to do things that was seemingly impossible when we were not living with chronic illness.  Do you find this helpful in your journey? Let me know in the comment what helps you to build a stronger mindset. Let’s connect to support each other in our journey of building stronger mental muscles.

Our being is body, mind and soul. To achieve bodily healing, actions need to be taken to give our body the best chance. I will share more in depth in my next post.

With lots of love,
Irene

Healing is Possible – Thymoma 50% Shrunk!

On By IreneIn Healing, Myasthenia Gravis Healing Journey, Suffering, The Beloved Who Suffers WellLeave a comment

So I had a flare early Dec 2024 which took a worse turn after 2 sleepless nights. With the symptoms of Myasthenia Gravis (MG) not stabilizing well enough by my routine appointment in early Jan, I caved in to 2 doses IV immunoglobulin which required hospitalization. Since I was warded, my neurologist asked if I’d like a chest CT scan done. It has been almost 2 years since my last scan, so I thought why not (even though it was not exactly pleasant). And that turned out to be such a blessing because the scan showed a 50% reduction in size of the thymoma! What a great sign and sight of healing!

What my neurologist said when he showed me the scan report was even more remarkable. He said: “Irene, your prayer works!”. I was so in awe of the scan report that it took me a bit of time to take in what he said. That was a testament of my faith and this faith comes with work (James 2: 17). When I was diagnosed with Myasthenia Gravis (thymoma present), we were getting ready for me to have the thymectomy surgery done once I was stable enough. However, God has a different plan.

As I was preparing myself mentally for the open chest surgery, I told everyone in my family that was the plan. My mother was devastated considering the nature of the surgery which was pretty major. She asked me to reconsider and look for alternative. But at that time, there was no alternative presented to us. MG was really new to us and it doesn’t help that it is also a rare condition with a vast variability. Looking back I understand now that we were responding to a crisis situation that was pretty traumatic. Our lives changed overnight and we were faced with the unknown. In that situation, we just jumped in to whatever that was available.

As I stabilized, the Cardiothoracic (CT) surgeon was not available. That was on top of the lockdown chaos where everything was in disarray. A year later, I started wondering if God was inviting us to see another way. So I prayed for clarity. The blessing that came out of being sick with MG was my openness to learning (and unlearning). I ended up in the rabbit hole of health and discovered so many things that was shocking to me. Shocking because I have been accustomed to a certain way of living, a certain way of “intelligence” and a certain way of processing information. In the midst of the rabbit hole adventure, I discovered that the thymus still has important functions and roles for our immune system. What a shocking discovery! I was told the thymus is basically useless in adulthood but that is far from truth. So I started to lean on the direction of foregoing the surgery.

Part of the learning process also brought me to the knowledge that Traditional Chinese Medicine (TCM) modality of acupuncture is helpful for MG. So there I was, praying for a good one and God did not disappoint. I met my TCM Physician who has a Masters in autoimmunity, not only that, he also has someone dear to him that is in remission of MG. What a blessing! Through them, I discovered that it is possible to shrink the thymoma naturally with herbs. So that sealed our decision to go the natural way.

The thymoma diagnosis also made it possible for me to do this. It is well encapsulated and not pressing on any of my organs, so it’s actually pretty stable. With almost zero information (or evidence) on natural shrinking of thymoma, we entered our journey with faith (2 Corinthians 5: 7). At that time, we did not know if anything was going to work. The encouragement I got from people were generally to do the surgery while I still can. And after the MG crisis in 2023, I even told my husband if nothing change in my thymus, perhaps it’s time to reconsider the surgery. Right actions after that led me to feeling better and I sort of forgot about surgery. In the midst of that, we discovered ONE documented case of thymoma shrinking. That was giving me hope. And that hope and faith was rewarded with sight on Jan 2025.

I was overcome by joy and was really in awe of my Good God who sees, known and loved me. Filled with hope, I’d like to share this hope with you. In my subsequent posts, I will be sharing more of what I’ve done and changes that has contributed to the physical healing of my thymus. Do share with me your thoughts on this miracle I am experiencing and if you are in similar situation, do connect with me and let’s help each other in our journey of healing.

With lots of love,
Irene

Remembering Dad

On By IreneIn Faith, Family, Fatherhood, Grief, Healing, Hope, Journey, LoveLeave a comment

It’s been 11 years since I said goodbye to my father. The memory of him losing consciousness when the stroke took a sharp turn; of us offering him the gift of salvation through the little means we had at that time and then the memory of that fateful morning 11 years ago when the young medical officer who was almost in tears breaking the news of my father’s passing to us. We took turn to say our final goodbye and I still remember telling him to hold on to Jesus and follow Him. Just 2 days prior to that, I was telling my dad to not leave us, telling him that he still have to see me getting married and to hold my children. But it was his time to go and when his heart stopped the second time that day, we decided to let go.

Death is never an easy topic to speak about or think about. But death is the only sure thing in life and whether we like it or not, it will sure come. If we are willing, death has a lot to teach us about life. In reality, we are never too ready to let our parents go, no matter what our age are. It is a sad separation from someone who is so important to us. Therefore it is important to grieve well, to grieve with gratitude. When my father passed away, that was the first lesson I learnt – grieving with gratitude.

Shortly after that, I left home for a year of community experience in New Zealand. Some thought I was crazy to leave so soon and some even thought I was selfish to leave my mother in that state. It was super hard for me to leave but the invitation from the Lord to trust Him in His plan was stronger than what my logical mind can conceive. So in obedience, I left home for mission. That year was the year I felt like my smile was not as bright, I easily tear up, missed my dad every day. There were tears and unspeakable pain in that time of grief and through that God spoke the loudest. Never once had I suppress my sadness and pain, but every time I’m done crying, I proactively seek gratitude of my father. I thank God for the time I had with him, the privilege of being his daughter and the traits I inherited from my father. With that practice of gratitude in grieving, my episode of crying was slowly contained to shorter duration as time passed.

My father was far from perfect and I recognized that he and my mother did their best with the knowledge and resources they had. Lessons that he taught me became precious and I was able to see my father for who he really was. That time of grief also clarified what’s important in life – relationship. The petty bickering amongst family became something unnecessary. But it was not always easy to talk in peace without yelling at each other, especially when it is not our family culture. For my part, I learnt to prioritize the relationship over being right. It took me some perseverance (and the grace that comes with sickness) to work on my part of communication with my family till this day.

The beautiful miracle that I experienced from that time of grief was the softening of my heart. Through the loss of my father (and the subsequent loss of my younger brother), I see myself allowing God to turn my heart of stone into a heart of flesh. I became more compassionate and a little more patient with people. Through that time of grieving, I never stop living. I kept moving with the pain and at the ripe time, I was able to bring a close to the grief. Today I cherish the fond memory of my father and also cherish those of us who is alive. We live life to the fullest and we learn to live with grief. When grief is done healthily, it is life giving and it helps us to put things in the right perspective.

Have you been grieving the loss of someone significant? If yes, how was the experience? Would you like to make sense of the experience? Let’s connect!

With lots of love,
Irene

This Is My Body

On By IreneIn Faith, Grace, Healing, Journey, Kingdom Lifestyle, Love, Sacrament, Season of Life, SufferingLeave a comment

What do you do when you cannot understand the priest at mass?

My response was to pray that God speak to me directly. I read this sometime ago that not being able to understand the language fully (in this context, Latin), the grace to enter more deeply into the mystery becomes present. That has certainly been my experience while attending mass in Latin. The beauty of Christ is veiled in the Latin language, I found myself free to just be and connect to the mystery of my salvation in an inexpressible way. But when it is in English, a language I am familiar with, it feels really hard when I cannot understand the priest. This can happen when the priest speaks in a thick foreign accent.

God is still present nevertheless. My difficulty in understanding the priest does not undermine God’s grace. I can still “hear” him and I find this very interesting every time I have difficulty connecting to the priest. So in this particular mass, God spoke to me when communion was distributed. I was looking straight ahead at the priest distributing communion and this came to me. The Body of Christ was broken and distributed to each communicant, as we each receive His Broken Body, Christ gather us into One Body – His Body. Then this scripture came alive in me;

“If one member suffers, all suffer together with it; if one member is honoured, all rejoice together with it.”
><> 1 Corinthians 12: 26 <><

My years of living with Myasthenia Gravis sure connects to this scripture. April of 2023 marks a deeply traumatic event in my journey; I had a myasthenic crisis that led to respiratory failure. The grace of God that overwhelmed me at that time also provided the space for me to connect the dot as to what may be the cause of the disease for me. Just a disclaimer, my view of the body is a whole, not fragmented into multi discipline of medicine branches. I am a whole person with different parts and each part is connected to the other. I felt strongly at that time that heavy metal poisoning was a plausible cause. The Holy Spirit confirmed this through my husband and my Integrative Medicine doctor; as both of them said the same thing to me. With that, we decided to move in that direction of removing all the mercury almagam filling while going on a heavy metal detox protocol. Praise be to God that I started getting better with each dental filling removal and replacement.

You see the poisonous mercury filling were all in my dental cavity but the poisoning affected my whole body resulting in a chronic illness. What does a chronic illness looks like? Imagine this; you have a cold and it lasted for a week, your body recover and you breath normally again. For a person with chronic illness, that one week last for years. It takes a split second for the onset of disease and it takes a much longer time to reverse it. We catch a cold just like that and it takes a week to reverse it. As for chronic illness, the disease may have been brewing through our toxic environment and when it reaches it’s peak, our body are not be able to hold it any longer, that’s when we are forced to stop and pay attention.

Similar to the Body of Christ, when one part is hurting the whole body hurts. When someone in the Body committed mortal sin, the whole Body hurt. We cannot ignore it. We need to nurse that part of the Body to health again. Question is how do we do that? In our highly snowflake and sensitive world, it felt out of place to point out sin. I have that difficulty because I feel that we should mind our own business. So what would be the most plausible way to nurse the wounded part of the Body of Christ back to health?

Personally I think the first step is to be aware that I am also a sinner and to remember what brought me to repentance in the first place. It is this living relationship with God that brought me back to the arms of the One who first loved me. Love stronger than death, most definitely stronger than my sins; touched my heart deeply. Ultimately our deepest desire is union with God for His love is sweet and life giving. Making amends to turn our life towards God is worth it. Repentance is sweet when we are in love and hence I believe the remedy is LOVE.

For someone to commit a mortal sin and not able to repent, it is very likely that this person does not have a living relationship with Christ. In our world where quick fix is glorified, it is so tempting to also do that to our brothers or sisters who is suffering the effect of mortal sin. But in reality, we are human. I started to grasp the reality of not quick fixing the others after becoming chronically ill. Not many people can grasp the fact that my condition cannot be fixed overnight, it’s not just a cold. I had to suffer through unrealistic expectation of others that I should be fine after some short period of time. Some still could not accept that I am no longer able to take too much rice (and carbohydrate in general), that choosing a different lifestyle supports my healing. Whenever I had a worsening, the frown on their faces was distressing to me. For this season of healing, I am also experiencing healing on a much deeper level. Those were moments of grace that taught me that my healing is not overnight. The “ah-hah” connections helped me to see that grace works in time. When the time is right, God revealed His message. So it is the same with the Body of Christ. The part that needed nursing back to health requires heaps of patience from the whole Body. We cannot rush the process!

The journey back to the heart of Christ is perhaps complex or in another way of looking at it, it is super adventurous. The result of our experience depended upon the choice of our view. Plain language may express it as being complex and when we choose to see it as an adventure, we yield our life to trust deeper. An adventure is both fun and stretching. In our journey of repentance, the joy and meaning that awaits us are enormous and it is possible through us saying yes to do the heart stretching work. May we find divine strength in our own journey of repentance and may we find compassion in accompanying the rest of the Body to wholeness.

With lots of love,
Irene

What It Takes to Sort out 48k+ Emails

On By IreneIn Coaching, Mental Fitness, Myasthenia Gravis Healing JourneyLeave a comment

I get an almost continuous prompting warning me that my inbox is almost full. And it comes with a solution: upgrade your space for $X. Nice solution but doesn’t serve my purpose. My personal email address has been in existence for 10 years now and I am the type who does not naturally sort things out in order. Just the way I am, preferring human connection than a tidy house kind of person. As in any human being, our strengths are complemented by our lack. Sometimes my weaknesses comes with a price tag. I often get overwhelmed by details as I am not a naturally detailed oriented person, so when I get overwhelmed, I run away from the task and procrastinate until it get the better of me. That often resulted in unnecessary stress.

Recently I discovered that tasks that used to be overwhelming no longer affect me as it used to be. The greatest example I had recently was sorting out 48k+ emails in my inbox to mere 6k+ of important emails worth keeping. It took me 5 days to do it in between other daily chores and it felt great to have that sorted out. That has been a great exercise where I get to look back at my the last 10 years of my life through the lens of the emails I received. It brought back the exact emotions I felt at the specific seasons of life. I also grieved the loss of some friendships who were important but whether I like it or not, it’s best that I come to term they are lost friendships. There were also moments of warmth reading emails from people who are already at the other side of eternity, brought back cherishing memories of these people. The changing seasons are also evident in the newsletters I subscribed. Some of them started from the beginning and are still relevant today. Some has been long gone as they don’t serve my season. It’s so interesting to see and embrace my life through this exercise.

Upon completion of this gigantic task, I noticed a few things;

  1. 48k+ emails is no joke and the fact that I felt stable all through was amazing. No overwhelmed feeling, I did not feel like I need to rush it, I am ok to take a bit at a time and it felt good to finish. In the past, I would have fainted, vomited and gave up after three pages. I am still in awe that it was possible and calm
  2. The ability to feel the emotions of the seasons again is a gift of looking back with gratitude. With that, moving forward in hope becomes a choice of lifestyle
  3. It was quite easy to delete things I thought was important back then
  4. I don’t need an overload of information, hence it is time to reevaluate what do I want in my inbox

I attributed my ability to calmly take on this task to my one year of mental fitness practice. I am a Transformation Coach who also offers Mental Fitness Training through Positive Intelligence (PQ). What better way to give than to be one who is living out the lifestyle of mental fitness practices. PQ practices bring about incremental improvement, it took me a year to reach this point where I see a breakthrough. A significant improvement is observed with just 6 weeks of practice and for me personally, I benefited from a continuous practice that strengthen my mental fitness.

Another major factor is my physical healing. It is one thing to praise God through sickness which is great as that is the source of strength and holiness. Having a physically abled body does make a heap of difference on how we take on life. The combination physical healing and being mentally fit are in my opinion making this great task possible. It is like speaking and living out the language of possibility in a whole new level.

Friends, if you are looking into improving your peak performance, wellness and relationships; do reach out to me for more information. I’d be delighted to hear your story and offer a way forward. As you take time to reflect upon your life, I pray that you’ll have the desire to for higher ground and greater joy. Wishing you the best in your journey.

With lots of love,
Irene

What I Learnt Through Sickness

On By IreneIn Celebration, Commitment, Courage, Faith, Grace, Hope, Journey, Myasthenia Gravis Healing Journey, Season of LifeLeave a comment

The vivid thing that I remember was being overwhelmed with grace in the beginning of the diagnosis of Myasthenia Gravis (MG). When I first started having symptoms, we did some research and were desperately hoping it was something mild and less nasty. The illness progressed really quickly to the point of hospitalization and looking back I now know I was just a day or two away from a full on myasthenic crisis, where intubation would be necessary. We are ever so grateful for the grace and the favor from the Lord upon us that I was just in time.

I was determined to make my season of healing a season of grace and that mindset became the guide of my search. The journey was tough and at every juncture, I searched for the blessings behind it. My mother was in my house helping me at the early stage and she needed to get back to my hometown for her doctor’s appointment; so my niece helped for a week followed by my sister for another week. Then the lockdown happened. I was a little more than month out of hospital, still very weak and found myself without any help. My attitude was “think possible and do what’s possible”. With the outlook of gratitude, here are some things I learnt (please note that these are my personal opinion derived from personal experience);

Emergency care is life saver
I am alive today thanks to emergency care where I get immediate help and rescue medication. In my case IVIg was administered to bring my body back to a more stable state. I am evermore grateful for my dear friend who helped me in the admission and also my neurologist who is respectful and dedicated to saving me at the time of hospitalization.

Get a medical insurance coverage in case you need it
This is where grace was really abounds. My work as a lay missionary paid me nothing monetarily and so that led me to a decision to put my insurance to a holiday mode. Thank God I get to restart it in time for its use. We are privilege to have private hospitals that can attend to us immediately. The bill was really huge for us and thanks to my medical insurance, I paid only a fraction of it. I got my medical insurance when I was young with the desire to not ever need it and it turned out to be a blessing when I needed it.

It’s liberating to unlearn limiting beliefs and learn new ones
I’ve worked as a medical representative for quite some time and the medical field was one that I looked from a one sided perspective. When I was diagnosed I was told there is no cure for MG and that I would be on medication for life. I know the fact that there is a possibility to depend on drugs for life but I do not like that option. So I start researching extensively on the topic of autoimmunity. The search opened my eyes to a whole new possibility of healing naturally. I learnt not only about autoimmunity but also about cancer. The whole dynamic of the body becomes something I start seeing a whole. It’s like scales were peeled off my eyes that I now am able to embrace the fact that the body is really interconnected. I may have an autoimmune of the nerves but healing my gut would be the gateway to heal the autoimmune.

Understanding the modality of natural means of healing gave me a lot of hope. My research led me to meet my Traditional Chinese Medicine (TCM) doctor who helped me to heal to the point of wellness. This in turn enabled me to start tapering down the immunosuppressant I am on. This is hope enfleshed and I am so grateful.

Diagnostic tools of modern hospital are helpful
I have a good relationship with my neurologist and I appreciate his care for me. Some MG patients are not as lucky as they did not meet good doctors who are respectful. The diagnostic tools in modern hospitals are really helpful in the navigation of disease management. Yearly CT scan is needed for me to monitor the thymoma, blood tests will give an indication of what’s going on. So for me, even though I am experiencing healing through my TCM doctor, I am still going under the care of my neurologist.

Mental fitness is a plus for healing journey
I am privileged to have gone through my own mental fitness journey in 2021 and now on the journey of advance coach training in this area. Mental fitness is our ability to take on life challenges with a positive rather than negative mindset. It’s the work developed by Positive Intelligence (PQ) and the programme has helped me tremendously in stress management. It is a well known fact that stress is a root cause of many diseases and I believe the it was major contributing factor to me getting MG. Since the diagnosis in 2020, I made it a point to regulate my emotions well. With PQ I was able to identify the source of stress in my life and am able to regulate even more effectively. I learnt tools that helped me to stop the spiraling down of negative thoughts and emotions that often resulted in stress and unhappiness. My PQ journey has seen me being happier and more productive in my work. I run an eight weeks mental fitness journey to as a foundation for clients who desires to achieve their desired outcomes with ease and great happiness. Connect with me to find out more.

Healing is possible when we take responsibility
Self responsibility is so crucial in healing. I take full responsibility for my healing by educating myself on the disease, being discerning on what I put into my body and choosing a healthier lifestyle. Education is what helped me to tap into hope of healing through the natural means and what I learnt is such a treasure on every front. Formerly a drug rep, I know well how modern drugs work. I acknowledge that modern drugs can be quite helpful especially in the beginning phase of getting ill. Dealing with symptoms can be debilitating and having drugs to help control it for a little while helps us get back on track. However, to gain full healing, it would be worth it to look at natural means. In my condition, the drugs I was on just could not bring me to a state of wellness. I thank God for TCM modality that brought me to where I am. Getting to know other people who are sick and stuck, it became apparent to me that they lack the courage to take responsibility of their bodies. They are likely to embody an attitude of helplessness and depended fully upon the advice of the healthcare provider without any question or research. Those advices are great but as responsible adults, we are invited to discern what’s best for us. Nobody knows your body better than you do, in all logic, we should be the “expert” of our bodies. What went missing that we became so disconnected from our bodies? I can answer that for myself – I was not present to my body and I did not know how to love my body fully. Through MG I learnt to reconnect, listen to and love my body the way God intended me to.

I intentionally choose my diet, lifestyle and what kind of medication I allowed in my body. Healthcare providers had encouraged me to take certain drug for prevention of some disease. My response was to check on the recommended drug; is it necessary? What are the contents of the drug? What potential side effect would it bring? Would the mechanism of action injure me due to my condition? What is known about this drug? Is it even ethical? These are some of the questions I would bring to the table of discernment whether to take any additional drug. In my discernment I would tap into grace of the Living God and connect to my instinct for decision. When it concerns life, I think it’s important to go beyond our rational mind to our intuition. All these requires a sense of self responsibility. This body is a gift from Christ and it is my responsibility to take good care of it.

God heals the way He pleased
One of my first response when I got sick was to pray. I invited family and friends to join me on a 54 days rosary novena with the intention of my healing. I secretly wished I would be one of those who received healing instantaneously. However, in my case God is pleased to heal me according to natural law. It’s a process that I go through with some days being great and some being really crappy. I learnt to be grateful through it all. This is a journey of endurance and trust training. I certainly see my trust in the Lord increase steadily. Do I still cry when it’s difficult? YES I do! I also experience recovery from the negative emotions way faster and with every hurdle comes greater trust. I am learning as St. Paul taught us to find contentment in all circumstances (Philippians 4: 12).

I hope my little nuggets of learning is helpful for you. Wherever you are in your healing journey, the burden feels lighter if you have someone who walk alongside you. Should you be considering a coach, I am here. My prayer for you is that you find fullness of life in the midst of your circumstances.

With lots of love,
Irene

From Fear to Fullness of Life

On By IreneIn Coaching, Courage, Faith, Grace, Hope, Journey, Kingdom Lifestyle, Myasthenia Gravis Healing Journey, Season of LifeLeave a comment
Teal is the color representing Myasthenia Gravis

June is the month dedicated to the awareness of Myasthenia Gravis (MG) and it has become really close to my heart being on my journey of healing from Myasthenia Gravis. Yes I know the general consensus said that the condition has no cure but I choose to trust in my body’s ability to heal. MG thrivers are sometimes called snowflake warriors for the fact that every case is unique. That pose a challenge of its own as there is no certainty or a good pattern as reference. I have taken the path of looking at my unique condition as an opportunity to experience fullness of life in ways I would not have explored otherwise.

When I was given the diagnosis in Feb 2020, my world was an utter chaos. There were so many things that I needed to consider and to take care of, all at the same time giving myself the best chance to beat this. Not only my world was chaotic, the world around me turned into a real chaos with the lockdown and restrictions started to affect our lives shortly after I was discharged from the hospital. The looming fear at that point of time was intense and I can feel it in the atmosphere. If anything you need to know about autoimmunity, extreme stress is very bad for any autoimmune condition. Mine was triggered by a prolonged period of unmanaged stress plus sudden change of environment. It is also known that people who are immunosuppressed like myself are categorized as being high risk of viral infection. So it was natural of me of being fearful.

I was just beginning to navigate life with a chronic condition and then this virus chaos came about. Fear was all over the place and I was not spared from it. Fear causes stress that worsen my condition and it’s very easy to see how bad it affect me. So I made a conscious decision since being out of the hospital to manage my stress well. This fear business took a toll on me as almost everyone around me were fear filled about the virus. I reached the tipping point real quickly and decided that fear is no way of living. It was sucking life out of me and I did not like it. In my desperation for life literally, I called upon the name of Jesus and asked Him; what should I do? How do I live?

“Let your faith be bigger than your fear!”

That was all I heard and that was enough to propel me forward. The first strategy of winning a battle is to know the enemy and that’s where I started – naming my fear. It was not hard to name them as the first and biggest one that came out was the fear of death. I feared death after escaping death not too long ago. I feared that an infection may kill me because at that point of time I was swallowing 20 tablets daily; a majority of which were immunosuppressive drugs. That would made me really vulnerable. Nailing this fear to the cross and charging forward in life with faith was my experience of saving grace. I have confidence and courage that I will live and thrive. Proper precaution taken, the rest is trust and choosing to live in joy. After all, my health is my responsibility, I personally think it is unfair to put my health risk as a burden for the rest of the society. Praise be to God for His protection; all through this year of healing I have regained strength and is rarely sick.

Putting fear in perspective is an important element in moving forward. The way to do that is to seek the truth about the specific situation. We know that the truth will set us free although it is likely to be uncomfortable. Let’s look at some comparison: if you catch a cold, you know that the chance of you recovering and healing is more than 99%. With that knowledge, fear is by logic small in comparison. The inconvenience of being unable to function optimally for a few days that may bother you more than the fear of death. In my situation with MG, nothing was certain. When I was administered with the rescue medication, there was no guarantee that it will work on me, we hope I respond which I did (with no side effects). Same with the maintenance medication, we can only hope I respond, which I also did until we adjusted the dose. When I asked if a remission is possible, the answer I got was “I can’t tell you for sure because MG is so variable. Some patients get into remission and it came back again, some get into permanent remission and some never get into remission”.

With such variability and uncertainty, it was very easy to despair and let fear grip over my life. But I knew this very clearly, fear perpetuate stress and stress worsen the symptoms. Given the situation, although saddened, I made the choice to live in hope. If some people get into a permanent remission, I shall be one of them. The choice I made to live in the fullness of hope and life carved my way forward. I took actions that would give me the best chance to get to the remission. A massive change in lifestyle was required – diet, habits, routine etc. It was a sharp learning curve to be in tuned with my body again. I realized how brainwashed I was! And that was uncomfortable! One great thing coming out of this healing journey is the deepening of my empathy towards myself as well as to others especially those who could not see a way forward in a fear saturated world.

Being able to face my fears with the truth and knowledge in hand and then move forward in faith has been a great blessing. I live in freedom precisely because I never allow the disease to define who I am. I admit it is not the easiest of journey and fear does creep in from time to time. I allow my self to process the fear and then to formulate the way forward with my Saviour. All this is possible thanks to my years as a coach and also those years in ministering to people as well as support from my inner circle.

Fear is a constant companion whether we like it or not. Some are necessary like in the case of meeting a tiger, you better let your fear propel you run for your life. I would say most fear we face today are opportunities if we allow them to. Dear friends, if you are having difficulty in navigating fear and are feeling stuck, do feel free to reach out to me. I run my own coaching practice and I can also recommend other coaches or counsellors to you. Know that it is my prayer for you to be well. Fear does not have the final say and it is possible to live victoriously. May you be blessed!

With lots of love,
Irene

Navigating Motherhood through a Chronic Disease

On By IreneIn Bountiful Potential, Celebration, Faith, Family, Grace, Hope, Journey, Motherhood, Myasthenia Gravis Healing Journey, Providence, Rest, Season of LifeLeave a comment

My world was in a daze back in February when I fell flat on my face on the road before being diagnosed with Myasthenia Gravis (MG): an autoimmune disorder that attacks the neuromuscular juncture causing muscle weakness; including voluntary muscles used for breathing. The first thing I was asked from every person I talked to was: “Were you carrying your baby when you fell?”. Thank God I was not carrying my baby. It all started a little less than a month prior to that fateful mid February day, when I noticed difficulty in chewing my food. I thought it was the effect of me feasting away during Chinese New Year.

The symptoms got worse that I started making my food softer and did some research on what could be happening to me. MG came out as the top possibility. Reading more about it made me dread it and kept hoping that it’s not MG. My GP was hoping of the same but somehow my symptoms worsen to the extent that I could not lift myself up from sleeping position, chewing became increasingly difficult that often followed by slurry speech, lifting my arms for short while took a toll on me, smiling was a task and I was constantly exhausted.

Upon arrival at the hospital, the neurologist ordered a brain MRI scan to rule out stroke. MG was given as a preliminary diagnosis that was to be confirmed the following Monday (I went in on a Saturday), when the nerve testing centre is in operation. We decided to go home for the night and planned to be seen as outpatient on Monday. However, I started having difficulty in breathing. It was a scary evening, the what ifs were all over the place.

Sharing with community of friends who prayed for me certainly helped me through that evening. I received the grace to accept the diagnosis and to enter into treatment regime. Upon seeing me as inpatient, my neurologist quickly ordered the necessary tests to be done and had me started on IV immunoglobulin (IVIG) rescue therapy while also start me on my longer term treatment. I was blessed to have tolerated the treatment well. After the first dose of IVIg, I could tie my hair and that felt so good. A Chest CT scan also revealed the existence of a thymoma which means surgery is needed to remove it but that can only be done once I am stable enough.

My biggest worry was my daughter. How am I going to mother? How am I going to provide for her anymore? I enjoyed our breastfeeding journey and does that mean I need to stop altogether? God was so gracious to speak to me at that time by inspiring me to seek breastmilk donation. I am grateful we have a very good network of breastfeeding advocates. Through the group and through friends who helped out, I managed to source out enough donated breastmilk that nourished my baby. Till today she is still enjoying the benefit of human breastmilk thanks to the generous giving of our local Mama Tribe. My own breastmilk supply has suffered a great decline due to the treatment. Even if it is limited, I am still grateful my child still get something from Mama.

We recognized that strength is the major challenge for MG patient, hence we were quick to get practical help. My mother arrived the day I was admitted to the hospital which was such great help for us. She helped me with the baby and daily household stuffs when my symptoms was at the worst. We also arranged for cleaning company to clean the house. My mother’s stay for almost a month helped me to balance a new lifestyle. I was able to get the rest I needed and to get around organizing stuffs that would aid daily living.

At the peak of the treatment to suppress the autoantibodies and to replenish my strength, I was swallowing 20 tablets daily with the help of 5 alarms to remind me of the timing. On top of that, I also started taking specific health supplement tablets to aid with my body function as well as to counter side effects of treatment. The first month since the diagnosis was really blurry. I could only hold enough strength to play with my daughter. I was afraid to carry her in case my strength fail and she slipped off my arms. My emotion was all over the place partly due to the side effects of the medication. Normalcy were hard to imagine.

Source from this link

Days passed and then months, I started to feel much better. Looking back at the timing, I can testify to the goodness and mercy of God. After my mum left, I got help from my niece and sister for a short while. I’ve also got a friend to help out with cooking on some days. At that point I started to take back the cooking role at home. God in His mercy showed me His unique way of empowering me forward.

Due to the lockdown, we were short of an extra pair of hands after my sister went back to her home and also was locked away from hiring help for cleaning. By that point, my symptoms has started to stabilize to the point that I was confident to carry my baby with the help of a carrier. But I still occasionally feel overwhelmed and limited. So I asked God what was the best view to see my situation? God was quick to answer: “think possible and do what’s possible!”

It was a great place to begin. What’s possible were different on day to day basis. Some days possibility looked like a clean house and warm meals, some days it’s the grace to be grateful that the day went well with little done in the house. There were times possibility meant just being able to pray and connect to my Source through the demands of motherhood. The invitation was to enter to a place of trust and rest; and I happily accepted that invitation.

One of the first breakthrough was me driving alone to pick up my baby’s breastmilk donation. Heaps of preparation ahead of time and I was so pleased that I made it. Driving can be difficult as the bright sun tends to tire me and often resulted in ptosis (droopy eyelid). That fateful morning was bright as and I responded with praise because if God allowed it, then He must be planning to show me His glory.

Thinking possible and doing what’s possible has also helped me to recognized my own preference. I realized piles of chores can overwhelm me, so I start to manage household chores in bite size. Meals became simpler and priority to spend time as a family became our top agenda daily. As my baby grow, her needs also evolve and I am invited to follow her growth with an open mind. The abounding grace I receive through prayer has helped me to have enough time and strength to learn about supporting my child’s development. One of the most fun thing we have decided to apply is Baby Led Weaning method of introducing solids. I had so much fun watching my baby enjoying her food and growing in her fine motor skills. Through all these, the joy of the Lord is my strength!

What brought me through from the peak of my flare up (with the autoantibodies level 200 times above the positive trace) to where I am now; is this scripture;

do not fear, for I am with you,
do not be afraid, for I am your God;
I will strengthen you, I will help you,
I will uphold you with my victorious right hand.

Isaiah 41: 10

A dear friend of mine reminded me to let the One who loves me hold everything up for me. That encouragement has helped me in my process of surrendering and that eventually led me to my rest in trust of the Lord. There’re still heaps to figure out and many are graces that I need. I pray that sharing my story with you will give you a sense of awareness about MG and that you are also encouraged to live in your victory through your circumstances.

With lots of Love,
Irene